COPD
COPD affects how you breathe and live day to day - here's what it is, how it’s diagnosed, and the treatments and support that can help you manage it.
What is COPD?
COPD stands for chronic obstructive pulmonary disease.
COPD affects an estimated one-third of a million New Zealanders (based on those who have been diagnosed), yet most have never even heard of it. Around 14% of adults aged over 40 years live with COPD, and it is the fourth leading cause of death in New Zealand. If you have COPD, you are also at higher risk of heart disease.
When we breathe, air travels from our nose and mouth down through our airways to our lungs. In people with COPD, the airways are permanently damaged, making it harder to breathe. COPD is an umbrella term for the conditions emphysema, chronic bronchitis and long-standing asthma. While these conditions can all have similar symptoms, they have different effects on the lungs:
- Chronic bronchitis is ongoing inflammation of the bronchi (airways in your lungs). Due to the inflammation, the airways produce extra mucus (sputum/phlegm). This can cause you to cough more and make it hard to breathe.
- Emphysema is where the air sacs in the lungs (alveoli) are damaged. Over time, the walls of air sacs are destroyed, creating larger spaces. This reduces the surface area of the lungs and makes the lungs less efficient.
- Long-standing asthma is a term used for those who have more persistent symptoms of their asthma all the time. Those who have long-standing asthma often have a persistent, dry cough, inflammation of the airways and trouble with shortness of breath.
People with COPD will often have a mixture of chronic bronchitis and emphysema, and some will also have long-standing asthma.
What are the symptoms?
- Coughing
- Increased mucus (sputum/phlegm)
- Breathlessness
- Chest infections
COPD gets worse over time, and the damage in the airways cannot be repaired. However, further damage can be prevented, and treatments can reduce breathlessness, improve quality of life and help people to live longer.
COPD and heart disease
If you have COPD, you’re at higher risk of heart disease.
With COPD, your heart has to work harder to pump oxygen around your body. People with COPD are 2-4 times more likely to die from heart disease.
This is because COPD puts extra strain on your heart, and over time this can lead to serious cardiovascular problems like heart failure or irregular heartbeats.
The risk increases even more during COPD flare-ups, when heart problems can develop quietly and go unnoticed.
People with COPD have a 28% higher risk of irregular heart rhythms, and this doubles with frequent flare ups.
Who gets COPD?
Smoking, including second-hand smoking, is the main cause of COPD. This means that for most people, COPD could be prevented by never smoking.
By stopping smoking, you can slow down the damage to your airways. That is why anyone who smokes will be advised to stop smoking when they are diagnosed with COPD. The course of COPD progression may be slowed if smoking stops, making it very important that people with COPD do not continue to smoke after diagnosis.
A small number of people who develop COPD have never smoked. These people may have chronic asthma or have been exposed to other inhaled pollutants, such as industrial dusts in their workplace.
A small number of people may have an inherited genetic condition called alpha-1 antitrypsin deficiency. This deficiency is the only hereditary risk factor known to contribute to COPD. Alpha-1 antitrypsin deficiency is a recessive trait most common in those of Northern European origin. People who smoke and have alpha-1 antitrypsin deficiency will experience accelerated damage to the airways.
About 14% of over 40-year-olds have COPD in New Zealand – that’s an estimated 1/3 million Kiwis. More than 6500 New Zealanders are newly diagnosed each year.
Māori are much more likely to develop COPD, compared to non-Māori. Severe COPD, and hospitalisation rates for Māori with COPD, are 3-4 times more common than non-Māori and Māori are more likely to die because of this condition.
These differences are due in part to inequities in housing and access to healthcare, along with higher smoking rates amongst Māori.
How can I get tested for COPD?
The most commonly used diagnostic test for COPD is spirometry.
What is spirometry?
Spirometry (measuring lung capacity) is the most useful test to diagnose and monitor COPD. It is also helpful for measuring the severity of COPD and will help guide your healthcare professional to work through your treatment goals and know which inhalers might be best for you.
This test itself involves blowing into a mouthpiece connected to a machine called a spirometer. It assesses how fast and for how long you can blow air out of your lungs. You may also be given a bronchodilator (a medicine used to relax your airways) during the spirometry testing.
What happens during a spirometry test?
Having a spirometry test is straightforward. You may find that you feel a bit puffed, but usually it is not uncomfortable. You will be given instructions on how to blow into the mouthpiece. Generally, it involves taking a full breath in and blowing out through the mouthpiece as hard and fast as you can. The test will be repeated at least three times. The test is performed when seated and usually takes 10 to 20 minutes.
You may be asked not to take your regular inhaler(s) before the test. Some people may have a second set of three tests after using a bronchodilator (a medicine used to relax your airways). This is done to assess if your airways respond to the inhaler.
Some people will also be asked to have a chest x-ray or a CT scan to look at the lungs in more detail. This is more likely if you are having frequent flare-ups or are very breathless. Blood tests can also help guide your healthcare practitioner on which inhalers may be best for you.
How do I manage COPD?
It is important to manage your COPD as effectively as you can. The good news is that there are lots of things you can do to control your symptoms and improve your quality of life.
Use a COPD Action Plan
Use a COPD Action Plan
A COPD Action Plan is a written or digital plan that will help you monitor how well you are and outlines what to do if your COPD gets worse. These plans are written with your health practitioner and can be downloaded here.
Become smokefree and vapefree
Become smokefree and vapefree
Research confirms that stopping smoking and avoiding tobacco smoke is the most important way to improve the prognosis in those with COPD. Quitting smoking is the single most important step you can take to improve the outcome of your COPD diagnosis. No matter how severe your COPD is, stopping smoking can slow further decline and damage to your lungs. It is never too late to stop.
Learn good breathing control
Learn good breathing control
People who have COPD have to work harder to breathe and tend to breathe using the muscles in their upper chest, rather than the lower chest muscles. This takes more energy and is tiring. A physiotherapist is the best person to help you learn good breathing control.
The benefits of good breathing control should not be underestimated. Breathing control is useful to manage shortness of breath and for times when you are unwell.
See below for tips on what to do when you are breathless and how to clear mucus (sputum/phlegm) from your lungs.
Diaphragmatic breathing
This is also known as ‘tummy’ breathing or breathing control.
- Place one hand on your tummy, over your navel. Your upper chest and shoulders should be relaxed.
- Breathe in through your nose; you should feel your tummy rise as you breathe in.
- Breathe out gently through your nose; your tummy will fall as you breathe out.
Practice tummy breathing first when you are lying down, when you are feeling relaxed. As you get more used to this breathing pattern, you could try it when sitting too.
Pursed lip breathing
- Breathe in through your nose slowly for about two seconds.
- Pucker your lips as if you're about to blow out a candle.
- Breathe out slowly through your mouth for four seconds.
What to do when you are breathless
Here are some things you can try to help reduce your breathlessness. Remember to get into a comfortable position when you try these techniques.
- Stop what you are doing and relax your body, particularly your shoulder and neck muscles.
- Try tummy breathing.
- Use pursed lip breathing: breathe in through your nose but breathe out slowly through pursed lips, as if you are blowing out a candle.
- Try not to hold your breath during exercise or activity – try to find a rhythm that suits the activity e.g. breathe in time with the steps you take while walking.
- Find a comfortable sitting or standing position: the most comfortable position when breathless will vary from one person to the next. The following positions support your breathing muscles and can make it easier to recover from an episode of breathlessness:
- Supported forward lean sitting: sit with your feet apart and flat on the floor. Lean forward and rest your elbows on your knees or a table.
- Supported forward lean standing: stand leaning forward and prop your elbows on a support e.g. the kitchen bench, a fence post.
- Supported standing: stand leaning backwards or sideways against a wall.
- High side lying: lie on one side, with several pillows to raise your head and shoulders.
Clearing mucus from your lungs
Some people with COPD produce a lot of mucus in their lungs and may find it hard to clear it. This can make breathing even more difficult. If you have a lot of mucus, you can learn ways to clear it (a physiotherapist can teach you this). It may help to use your reliever inhaler to open your breathing tubes before trying to clear mucus. Changes in the colour of the mucus may be a sign you have a chest infection, and you should contact your healthcare practitioner.
Try the following breathing exercises in the morning and evening to remove mucus.
- Start with some relaxed tummy breathing (diaphragmatic breathing).
- Then take four or five deep breaths, breathing in through your nose and out through your mouth.
- Take a break with relaxed breathing.
- Then repeat the four to five deep breaths.
- Follow these with one or two “huffs” (cough mucus up if it reaches the throat).
- A HUFF is a slow breath IN and a forced breath OUT with your mouth shaped like an “O”. Huffing helps move the mucus from your breathing tubes to a place where it can be coughed out.
Keep physically active
Keep physically active
Exercise is important for managing COPD. Exercise that makes you ‘huff and puff’ is good for your lungs and heart. Ideally, you should exercise for about 20-30 minutes per day. You may need to start with 10 minutes of exercise and slowly build this up over time. As you become fitter, your body will adapt, and everyday activities will begin to feel easier. Exercise should include aerobic (five days per week), strengthening (two days per week) and flexibility (daily).
Pulmonary rehabilitation programmes
Pulmonary rehabilitation programmes
Pulmonary rehabilitation is a programme of education and exercise which usually runs for 6-12 weeks. Pulmonary rehabilitation reduces breathlessness, improves quality of life, and reduces depression in people with COPD. Everyone with COPD should attend at least one programme as it helps to understand all you need to know about COPD and how to manage it. Find a programme here.
Maintain a healthy body weight
Maintain a healthy body weight
Although you may lose your appetite if you are breathless, it is important to eat well. With COPD, more energy is required by the body for breathing, so you need to alter your diet to allow for this. If you are overweight, your breathlessness may become worse as your body works harder to carry extra weight.
Visit your health team regularly
Visit your health team regularly
There are lots of people who can support you to look after your COPD. It is important to build a partnership with your healthcare practitioner. Following their advice should help you manage your symptoms. See our list of regional Asthma Societies here.
Physiotherapy
In addition to pulmonary rehabilitation, a physiotherapist can teach you breathing exercises, ways to help manage breathlessness and techniques to help clear mucus.
Visit physiotherapy.org.nz to find a local physiotherapist.
COPD Support Groups
These are usually informal groups for people who are affected by COPD. They aim to provide a supportive and non-judgemental environment and to relieve the isolation that can be felt by people living with COPD.
See our list of our regional partners and contact your local branch for information on their COPD support services.
Health Social Worker
Social workers can provide support to people with COPD and their families by pointing them in the direction of counselling, referrals to community services and support groups. Speak to your healthcare practitioner for a referral to the Social Work department at your local Te Whatu Ora Health New Zealand hospital.
Occupational Therapist
An occupational therapist can teach people easy ways to do basic daily tasks that become more difficult for people who are unwell. Speak to your healthcare practitioner for a referral to an occupational therapist.
Keep vaccinations up-to-date
Keep vaccinations up-to-date
An important preventive action for people with respiratory conditions is appropriate vaccination, including against influenza (flu) viruses and pneumococcus (which causes bacterial pneumonia).
To improve access for people who need it most, the annual flu vaccine is free for people who have a diagnosis of COPD. Find out more here.
People with COPD are also more at risk of severe illness with COVID-19. It is important for everyone with COPD to get COVID vaccination and booster doses as recommended by the Ministry of Health New Zealand.
Maintain a warm, dry and well-ventilated home
Maintain a warm, dry and well-ventilated home
A damp and humid home encourages mould growth. Mould can trigger COPD symptoms and increase the likelihood of a flare-up. To avoid mould growth, keep your home warm, dry and well-ventilated. You can reduce humidity by using a dehumidifier. Placing a dehumidifier in the bedroom may be particularly useful if your COPD symptoms worsen during the night. You can find out more about how to improve the health of your home here.
If you are living in a damp/mouldy home, you may be able to get help through the Healthy Homes Initiative or through Warmer Kiwi Homes.
EECA (Energy Efficiency and Conservation Authority) also has a range of tips for a warmer, drier and more efficient home.
Manage your stress
Manage your stress
Stress can be a COPD trigger. It may cause your breathing rate to increase, which can make you feel out of breath. Living with a chronic medical condition can increase how often a person feels stressed.
What can you do about stress?
- Change your pace or do something different.
- Try to keep as active as possible. Exercise can reduce stress hormones and increase the production of endorphins.
- Share the load with a friend or counsellor.
- Be realistic about the number and types of activities you can do in a day. You may need to swap jobs in the house that demand too much energy (e.g., cooking instead of gardening).
- Conserve your energy so that you still have time to do the things you enjoy.
- Learn to accept responsibility for your own feelings. Even when things seem unfair with your health, it's up to you to regain control over your feelings and actions.
Acknowledgement for assistance with this information to Claire Dawson, Senior Clinical Psychologist, Canterbury Respiratory Services.
Take your medication as prescribed
Take your medication as prescribed
Some people may require medicine to help them manage their COPD symptoms. It is important that you understand how your medicines work and then take them as prescribed. COPD medication works by either opening up the airways (beta agonists) or by relaxing the muscles around the airways (muscarinic antagonists). Both of these medications work to relieve COPD symptoms and make breathing easier.
What medications and treatments are available for COPD?
Reliever (short-acting bronchodilator) inhalers
After being diagnosed with COPD, most people are prescribed a reliever (short-acting bronchodilator) inhaler. A reliever inhaler relaxes and widens your airways to help you breathe easier. These medicines begin working quickly, and you should find it easier to breathe within minutes.
Your reliever inhaler (puffer) should only be used when you notice you are wheezing, coughing, out of breath or feel a tightness in your chest. Relievers can also be used before exercising or performing a strenuous task.
If you need to use your reliever inhaler more than four times per day, you need to consult your healthcare practitioner. You may need to change to a long-acting bronchodilator.
Maintenance (long-acting bronchodilator) inhalers
Maintenance inhalers (long-acting bronchodilators) are used if symptoms remain despite using a reliever inhaler. Most maintenance medicines take longer than relievers to begin working. Each dose of a maintenance inhaler lasts for at least 12 hours, compared to four hours for reliever inhalers.
The two types of maintenance inhalers are:
- Long-acting muscarinic antagonists (LAMA)
- Long-acting beta agonists (LABA)
LAMA inhalers are recommended first-line as a maintenance inhaler for COPD. However, if a LAMA inhaler by itself is not enough to control breathlessness or flare-ups, a combination inhaler with both a LAMA and LABA can be used.
Inhaled corticosteroids (ICS)
Some people with severe COPD benefit from having an inhaled corticosteroid (ICS) along with a maintenance inhaler. ICS can help if people are having frequent flare-ups. ICS can help reduce inflammation in the lungs and will often be given as a combination inhaler along with a maintenance medicine (i.e. ICS/LABA). For some people, this can be a triple therapy inhaler (i.e. an ICS/LAMA/LABA combination inhaler).
Your healthcare practitioner may look at blood test results to help them work out if an ICS is likely to be helpful. They may also give you a trial of treatment for a few months to see if it helps you. If this medication proves to be useful, it must be taken every day to have an effect.
Find out more about different inhaler devices and how to use them here.
Antibiotics
Chest infections can be a problem when you have COPD. Antibiotic treatment may be necessary if you have increased mucus (sputum/phlegm), your mucus changes colour, and you generally feel unwell. If you are prescribed antibiotics, you must always take the complete course, even if your symptoms improve. This is to prevent relapse and to avoid the development of antibiotic resistance.
A small number of people who are having a lot of flare-ups will benefit from long-term antibiotics. These can have side effects, so would usually only be prescribed by a specialist hospital service.
Oxygen therapy
Oxygen therapy is not used to treat breathlessness. Instead, it is used when the damage to your airways causes a low concentration of oxygen in your blood. Oxygen therapy can increase your energy and ability to exercise, as well as reduce the risk of damage to your heart. If you are prescribed long-term oxygen therapy, it will be recommended that you use oxygen for at least 15 hours per day. Oxygen therapy can only be prescribed to non-smokers, as having oxygen in the house is a fire risk.